Back in school (and therapy) I learned that metaphors are much richer in information than just the word given. In a group, for instance, saying “I feel depressed” isn’t quite as vivid as saying “I feel like sand bags are tied to my feet.” But wait–using “like” makes it a similie, doesn’t it! Well, similies are okay too. Which is a back door way of telling you how I feel right now: “like” a honeycomb devoid of honey. I can see I’m going to have to go and make a collage to fill up my honeycomb.
All posts for the month September, 2016
Was I Hacked on Face Book or What?Published September 29, 2016 by Nan Mykel
Late on 9/28/16 I responded to a friend’s video of birds eating together at a feed bowl. I was asked for a one-word response and I wrote “Awesome.” Then my words got overlaid by “Russia is awesome. We love Russia.” ??? When I went back to see if the inserted remark was still there I couldn’t find the video. Maybe Face Book deleted the whole posting???
It’s Like This, Officer…Published September 27, 2016 by Nan Mykel
Very Near TearsPublished September 25, 2016 by Nan Mykel
I am very near tears when imagining what lies ahead for the zika mosquito babies.
A rally was held in Gallipolis, Ohio Thursday in support of the staff and residents of the Gallipolis Developmental Center who are falling prey to the mis-used power of some elected state officials. My daughter Sallie, visiting from Atlanta, captured most of the speeches on video for Kaleidoscope, the Athens public access cable 23 show. It will play on You tube after awhile. I can only share some of the primary concerns of residents at GDC and their families.
The tape will run the next two weeks on Access, listed as Kaleidoscope.
A state developmental center near Dayton and one near Youngstown will close entirely by July 1, 2017, and while the state legislature passed a bill to provide an Oversight Committee to insure that the process of transition from these centers be safe and in the resident’s best interests, GOVERNOR KASICH VETOED it.
The group homes won’t have the same level of essential services provided currently. Staff training is minimal and staff turnover robust. (The “second family” concept will not develop.)
There will be no cameras required to follow the safety of residents. (In the state facilities there are cameras in public areas to protect residents and staff,)
Families, guardians and residents have been led to believe that if dissatisfied with a new group home after leaving GDC, they can choose to return to GDC. This is not now the case. (One of these sad cases is current).
An impending firing of 32 GDC staff has been announced, with half of them being re-hired part-time.
Allegedly EMS has had to visit one group home with narcan for a staff member who overdosed on street drugs at work.
The residents’ workshop has been moved out of Gallia county, requiring an hour and half round trip to a different county.
Parents and guardians were told that if the resident doesn’t decide to go now, the best group homes would be filled, and only the least desirable ones will be available.
“Deinstitutionalization.-There is a nationwide trend towards deinstitutionalization of patients with intellectual or developmental disabilities in favor of community-based settings. The Department [of Justice] is strongly urged to continue to factor the needs and desires of patients, their families, caregivers, and other stakeholders, as well as the need to provide proper settings for care, into its enforcement of the Americans with Disabilities Act.” ( Conference Report to accompany H.R. 83, Consolidated and Further Continuing Appropriations Act, 2015 (Division B, Commerce, Justice, Science and Related Agencies) (Pub.L. 113-235, December 16, 2014)
At the community level in Athens, one of the reasons for closing the ATCO sheltered workshop which has served the community for decades, was Medicaid, “segregation” (!!) , and “access to the community” (!!).
“Creating a disjointed, fragmented, and incredibly costly system of small house settings will only increase the difficulty of providing care, community experiences, and choice for the 6,800 developmentally disabled Ohioans. In fact, this is likely to result in the opposite of community integration — isolation.” (See vor.net)
“Individuals with intellectual and developmental disabilities (I/DD) are far too frequently finding life-sustaining services pulled out from under them by agencies charged with the duty to protect them – namely state departments of developmental disabilities and protection and advocacy organizations. They attempt to use the law as a weapon against the community of people with disabilities instead of the tonic it is meant to be. ” (Caroline A. Lachman at vor.net)
We were very fortunate 45 years ago when my Downs daughter was born into a supportive, caring society, as opposed to today…and tomorrow?
Speakers urged EVERYONE to telephone Gov. Kasich once a day for 30 days to support the establishment of the Oversight Committee which the state legislature passed:
1-614-466-3555 day or night
Neurotypical AwarenessPublished September 23, 2016 by Nan Mykel
I had no idea. Thanks for sharing.
Being diagnosed late in life has meant that I’ve needed to learn a lot about a new subject that I didn’t know applied to me. I’ve read personal accounts written by autistic people, I’ve read research papers, I’ve looked into coping mechanisms – and mostly found that I’ve built my own solutions over the years without realising what I was doing. Trial and error were my constant companions.
Learning about what being autistic is, means that I can see the links between my behaviours and motivations for what they really are. Neurotypical motivations don’t apply to me, I don’t work like that.
It’s been a journey of acceptance and understanding that has increased my quality of life exponentially.
I listen to myself more. I recognise my needs. I don’t always do the things that would stop overload, but I’m aware of the consequences, I rock if I need to rock…
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poetry lurks outside my window–dVerse Open Link NightPublished September 23, 2016 by Nan Mykel
poetry lurks outside my window
tree branches alive with dance
then only stillness
outside my window
leaves don foliage for death
so many unknowns
leaves—gold crimson bright
each one a work of beauty
too many ignored
cupped, catching the rain
curled leaf-maws hold pure water
life-source for our thirst
what seems like dying
leaves fallen to earth in heaps
bare branches reach out
offer their fruit to wax wings
Photo: David Slotto Cedar Wax Wing
This is the day we get to play with poetry, any form, any topic, for dVerse Open Link Night, and I hope to see you there.
Autumn has crept in. This morning 37 degrees and windy and I had to cut short my walk, letting my North Dakota-born husband finish the route with the dogs. By the end of the week, it’s…
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When I Grow Up– for d’VersePublished September 22, 2016 by Nan Mykel
WHEN I GROW UP…Will I still be me?
I want to know
most terribly so.
While rooming in the womb,
on the stage behind the curtains,
of change. Whose screams?
I arrived, a piece of ignited clay
presenting with my backside,
bringing pain on opening day.
White Peacock at Temple of GoldPublished September 21, 2016 by Nan Mykel
Talk about arrogance if you like, but you could also talk about pristine loveliness of one among many white peacocks at the Temple of Gold in West Virginia earlier this year.
About ZoralinQPublished September 20, 2016 by Nan Mykel
ZoralinQ. [Dawn in the forest is an unknown variable] The closer you get to ZoralinQ, the closer you get to the edge. But, you find it isn’t like all things we think it is, “The Edge,” must …
Source: About ZoralinQ
I WONDER for d’VersePublished September 20, 2016 by Nan Mykel
What’s in her head? Is she just feeling cold?
Are she and her babies
both trading warmth?
We know she’s not thinking
But what is she feeling?
What’s going on beneath
all those feathers?
She’s not feeling stuck
like some humans might do,
but following the path
laid down in her genes,
and so on and on.