A mixed bag

All posts in the A mixed bag category

Words

Published August 9, 2016 by Nan Mykel

The world of disability advocacy boasts its own language, for better or worse. In some instances for the better, hurtful labels to describe a type of disability have been replaced by words that do not yet have a pejorative connotation. In other cases, however, terms of common usage, such as “choice,” “inclusion,” “integration” and “community,” have been incorrectly redefined to mean only certain choices or certain places according to the user’s ideology. In these instances, some individuals with disabilities have suffered due to a lack of individualized care in favor of ideology.

“We feel strongly that people with autism and/or developmental disabilities have the right to choose where they receive services, with the help of their family members and legal guardians as appropriate,” says Huso. “Unfortunately, prevailing public policy has taken the ‘person’ out of person-centered planning favoring instead an approach that attempts to push everyone into small residences without any regard to individual need or choice.”

VOR believes by serving people according to individual needs and choices it is more assured that they enjoy greater happiness and a higher quality life experience – whether in a family home, small home or specialized facility setting. The needs are diverse – one size does not fit all.

“‘Inclusion’ has become more about pushing people with profound needs out of specialized care or denying access (deinstitutionalization), rather than focusing on meeting unmet human needs,” said Huso. “As a result, vulnerable people are truly suffering and are far more isolated in unprepared settings.”  http://www.vor.net/about-vor

Creativity – a poem for Dversity

Published August 9, 2016 by Nan Mykel

Creativity

What do you do when the spigot runs dry?

I mean, besides sit down and cry?

If there’s no more, is there something?

Listen, touch, smell, taste and oh yes,

look….

The clouds are always making faces,

aren’t they? The world is going on

about you without you. You don’t have to do it

all.

Let the birdsong lift you, the trees bring you

shade. Be soothed in life’s great cocoon

and just be.

 

A poem for Dverse

Understanding the need to repeat and frame Values

Published August 6, 2016 by Nan Mykel

Reblogged on WordPress.com

Source: Understanding the need to repeat and frame Values

But Have You Tried Forest Bathing?

Published August 3, 2016 by Nan Mykel

imagesMore experiments have  confirmed that nature–being in, looking at, smelling–is physically healing in a number of ways, as revealed in the July 25, 2016 issue of Time magazine, page 24.  In “The Healing Power of Nature,”  Alexandra Siffilin writes that for years the Japanese called it “forest bathing,” or shinrin-yoku, and it was believed to lower stress, but it hadn’t been proved.  Now a number of experiments have shown positive results.  If you’re stressed and your office doesn’t even have a window in it…what do  you expect?  I had heard previously that just taking time to look at one of those large nature posters can boost  your immune system.

Looking for Sarah Herman aka Love

Published July 25, 2016 by Nan Mykel
Nan wanted to see "the real Medusa" which is on the cover of her new book. She met the artist for the first time and fell in love with the sculpture. She bought it on the spot, and it is now in Nan's livingroom. The artist is Sarah Love, 24. The photo was taken at their meeting at McDonald's in Nelsonville, Ohio.

Nan wanted to see “the real Medusa” which is on the cover of her new book. She met the artist for the first time and fell in love with the sculpture. She bought it on the spot, and it is now in Nan’s livingroom. The artist is Sarah Love, 24. The photo was taken at their meeting at McDonald’s in Nelsonville, Ohio.

How to Talk with Inner Voices (Reprint from England)

Published July 20, 2016 by Nan Mykel

HVN England Release Position Statement on DSM 5
Friday, July 5th, 2013, 5:27 pm”>July 5, 2013f=”http://www.intervoiceonline.org/national-networks/england”=”http://www.intervoiceonline.org/news” rel=”tag”>News Share your views

It’s the Bad Things that Happen to you that can Drive you Crazy!

The Hearing Voices Network in England has issued a position statement on DSM 5 and the wide issue of psychiatric diagnoses following last week’s debate on the need for a new paradigm in mental health services, reported largely as a ‘turf war’ between psychiatry and psychology. Concerned that this debate can all too easily sound ‘academic’ and miss the voices of the very people these systems impact upon – those diagnosed with mental health problems – HVN are taking the debate back to the people.

“We believe that people with lived experience of diagnosis must be at the heart of any discussions about alternatives to the current system.”

Jacqui Dillon, Hearing Voices Network, Chair.

In their statement, the Hearing Voices Network (HVN) state that psychiatric diagnoses are both scientifically unsound and can have damaging consequences. HVN suggest that asking ‘what’s happened to you?’ is more useful than ‘what’s wrong with you?’.

Concerned that essential funds are being wasted on expensive and futile genetic research, they call for the redirection of funds to address the societal problems known to lead to mental health problems and provide the holistic support necessary for recovery.

This is part of a growing, international movement by survivors of the psychiatric system who are questioning the adequacy of a biomedical model to make sense of and respond to madness and distress.

For more information, see:

www.mindfreedom.org
http://psychdiagnosis.weebly.com
www.madinamerica.com
www.occupypsychiatry.net
www.youtube.com/openparadigmproject

HVN invites people with lived experience of diagnosis and their supporters to engage in a discussion about the issues and help plan a way forwards.

“People who use services are the true experts on how those services could be developed and delivered; they are the ones that know exactly what they need, what works well and what improvements need to be made. This is not just an academic or professional issue – it’s one that affects our lives.”

Jacqui Dillon, Hearing Voices Network, Chair

To read the position statement, see:

www.hearing-voices.org/about-us/position-statement-on-dsm-5

BO PEEP IS HIDING – 100 word fiction

Published July 13, 2016 by Nan Mykel

sheep-and-car

 

 

Bo Peep is hiding under her bed.

She thought she’d turn things on its head.

Why should she have to run after her sheep

When all they do is bleat and sleep?

If they cared about her they’d come looking

to see what strange thing was cooking.

In order to help things move along,

She quietly sang  a little song.

“Hidey hidey yo ho!

Come peep to find yo Bo!”

At first the ploy didn’t work.

She just lay there, her face a smirk.

Then to the rescue came a nose,

poked under the bed where she snoze.

“I’M LOVED!”

SYNCHRONICITY OR SERENDIPItY?

Published July 12, 2016 by Nan Mykel

american scholarI’m having difficulty deciding whether events are one or the other. Perhaps both? Today I experienced what I would judge to be a minor S or S. I’ll tell you about it. I was at a friend’s house last night just engaged in a kindly bit of gossiping, I guess you could call it. I was trying to remember the name of a man who had visited our poetry group once and invited us to another regular poetry reading venue in town.  I told her his name would probably come to me on the way home, bu it didn’t. Although I am not a member of Phi Beta Kappa, I was reading “The American Scholar” tonight –it had been in a free bin or something–and the article on the last page brought Will Dewess’ name to mind. The article’s author was William  Deresiewicz.  Wait–don’t go away, there’s more.  Another name I couldn’t think of was very frustrating. I could remember the book he wrote (The Birth of Consciousness in the Bi-Cameral Mind), but not his name. Again, that was during my visit last night, and tonight while reading the same issue of  “The American Scholar,” I came across a discusson of his book and his name–Julian Jaynes.  Now that isn’t a great example of S and S, but I’m going to start noticing them and sharing them.  The journal was a real gold mine, since it also contained some interesting info for another post on the Our Shadow Selves page. (See next posting)

VOICES IN OUR HEAD (re-titled)

Published July 12, 2016 by Nan Mykel

As I said earlier, I am NOT a member of Phi Beta Kappa, but somehow was reading a copy of their journal “The American Scholar”  (Summer 2012) in bed tonight and on page  48 came across a very apropos article called Living with Voices.  It’s so good I found it  for you at https://theamericanscholar.org/living-with-voices/ so you can read the whole thing.  You don’t have to subscribe or sign up–just click on the name of the article under Summer 2012,Living with Voices.
There’s a lot there to interest you, but what I glommed in on was how to deal with voices in your head, especially aggressive (the Shadow?) ones.  And the author (T. M. Luhrmann) never used the word at all.

A Synchronicity (The Timing Was Perfect)

Published July 10, 2016 by Nan Mykel

My youngest daughter was born in 1971, with Down’s Syndrome and the congenital fatal heart malformaton common to Down’s children. My pediatrcian told me there was no cure for it, and over the first few years she would grow steadily weaker until she ultimately died.  We were living in Atlanta, Georgia at the time and I felt the need for a small, protective living environment for myself and my total of 4 children.  I had heard of Celo, a small planned Quaker community in the mountains of North Carolina,  and called ahead to check out the possible availability of a rental

skinny

086cabin there.  There was one cabin available, and  I was given the landlord’s phone number.  The year was 1976.

I called and described my situation and it turns out the landlord was a physician who inquired about the

nature of my daughter’s heart defect.  He told me that surgery was now available for the defect, and as it turned out she subsequently underwent  and survived reparative heart surgery at Eggleston Children’s Hospital at Emory University, about three blocks from our home in Atlanta.

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