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To My Best Friend on the Right — Excerpt from robertmgoldstein.com

Published July 14, 2016 by Nan Mykel

Excerpt from
https://robertmgoldstein.com/2016/06/28/to-my-best-friend-on-the-right/

We met over 40 years ago when I was still in my teens.

You are my oldest friend and the friend I love most.

You invited me into your family.

You ushered me into adulthood.047

You cared for me when I was at my worst; when doctors dismissed
me as malingering; you knew my pain was real.

Over the years we grew and changed but we never lost each other
and I never lost my love for our friendship.

When I tested that friendship with my addiction you went silent
but you didn’t go away.

You forgave me when I was ready to admit that I was ashamed, and
wrong and sorry.

I didn’t lose you but over the years we changed and spoke less often and
slowly drifted apart until we met again on Facebook.
And now I am baffled.

How do I reconcile the friend who …. ( visit site for more )

Rob Goldstein 2016

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06/28/2016
Robert Matthew Goldstein.com

Rob’s post really grabbed me, as others of his do. Check his blog out…

Healing Voices Invitation — from Hearing Voices

Published July 14, 2016 by Nan Mykel

“Comment on World Hearing Voices Day ‘Healing Voices’ Screenings: An invitation” “http://www.intervoiceonline.org/4361/news/healing-voices.html#respond”>Share your views

We’ve been contacted by the producers of ‘Healing Voices‘, a documentary that explores experiences commonly labelled as ‘psychosis’ and ‘mental illness’ through the real-life stories of individuals working to overcome […]

http://www.intervoiceonline.org/tag/world-hearing-voices-day” rel=”tag”>World Hearing Voices Day

World Hearing Voices Day – 14 September

2016 has been a difficult year so far, with many violent actions fuelled by intolerance, hatred and fear. We stand alongside those who have been victimised, hurt, abused, neglected or left feeling […]

BO PEEP IS HIDING – 100 word fiction

Published July 13, 2016 by Nan Mykel

sheep-and-car

 

 

Bo Peep is hiding under her bed.

She thought she’d turn things on its head.

Why should she have to run after her sheep

When all they do is bleat and sleep?

If they cared about her they’d come looking

to see what strange thing was cooking.

In order to help things move along,

She quietly sang  a little song.

“Hidey hidey yo ho!

Come peep to find yo Bo!”

At first the ploy didn’t work.

She just lay there, her face a smirk.

Then to the rescue came a nose,

poked under the bed where she snoze.

“I’M LOVED!”

SYNCHRONICITY OR SERENDIPItY?

Published July 12, 2016 by Nan Mykel

american scholarI’m having difficulty deciding whether events are one or the other. Perhaps both? Today I experienced what I would judge to be a minor S or S. I’ll tell you about it. I was at a friend’s house last night just engaged in a kindly bit of gossiping, I guess you could call it. I was trying to remember the name of a man who had visited our poetry group once and invited us to another regular poetry reading venue in town.  I told her his name would probably come to me on the way home, bu it didn’t. Although I am not a member of Phi Beta Kappa, I was reading “The American Scholar” tonight –it had been in a free bin or something–and the article on the last page brought Will Dewess’ name to mind. The article’s author was William  Deresiewicz.  Wait–don’t go away, there’s more.  Another name I couldn’t think of was very frustrating. I could remember the book he wrote (The Birth of Consciousness in the Bi-Cameral Mind), but not his name. Again, that was during my visit last night, and tonight while reading the same issue of  “The American Scholar,” I came across a discusson of his book and his name–Julian Jaynes.  Now that isn’t a great example of S and S, but I’m going to start noticing them and sharing them.  The journal was a real gold mine, since it also contained some interesting info for another post on the Our Shadow Selves page. (See next posting)

VOICES IN OUR HEAD (re-titled)

Published July 12, 2016 by Nan Mykel

As I said earlier, I am NOT a member of Phi Beta Kappa, but somehow was reading a copy of their journal “The American Scholar”  (Summer 2012) in bed tonight and on page  48 came across a very apropos article called Living with Voices.  It’s so good I found it  for you at https://theamericanscholar.org/living-with-voices/ so you can read the whole thing.  You don’t have to subscribe or sign up–just click on the name of the article under Summer 2012,Living with Voices.
There’s a lot there to interest you, but what I glommed in on was how to deal with voices in your head, especially aggressive (the Shadow?) ones.  And the author (T. M. Luhrmann) never used the word at all.

My Problem with Blogging

Published July 12, 2016 by Nan Mykel

I’m becoming aware that one of my problems with blogging–theoretically/psychologically at least–is that I can’t hit a middle ground.  Most other posters are positive or if not are mildly sad/reflective.  Others seem so bitter/poor me-ish that they seem to be avoided. Only a couple, maybe, are by those strong enough to be both crushed and cemented back together, and sterlingly honest.

It seems most of my life I’ve been trying to protect others from me. I don’t want to grovel and I don’t want to influence others to either grovel or feel revulsion/pity or worse for me, or them.  How can I share that part while blogging?   I could try and conduct a collage no-words venue but it’s tough to do a collage without the fear of some copyright infringement.  One of the attractions of       Screen Shot 2016-02-12 at 12.13.03 PMblogging is the connection-with-others’ part, and to do a blog anonymously and let it all hang out does not seem a solution–I still might bring some others down to my level of craziness. .  I know, therapy, but for me only a group would work and I don’t find too many kindred souls in this neck of the woods.

Does anyone else feel any pressure to seem a little more up-beat than they really are, for the sake of others?  Dverse is fun and everyone praises your work, but…I bet I could construct the worst verse possible and get stroked for it.  Maybe it’s not blogging but only life  that’s that  way.  Maybe it’s just folks going through a temporary depression that feel that way.

At any rate, this post just expresses  a problem for me, no solutions, and maybe it’s just a passing problem. If anyone else has something to offer, please do so.  And by the way, I’m not looking for a cure just a way to be obnoxiously groveling and tearful, while biting any hand that reaches out to comfort.  It sounds like a Shadow set-up to me, but that’s me!

A Synchronicity (The Timing Was Perfect)

Published July 10, 2016 by Nan Mykel

My youngest daughter was born in 1971, with Down’s Syndrome and the congenital fatal heart malformaton common to Down’s children. My pediatrcian told me there was no cure for it, and over the first few years she would grow steadily weaker until she ultimately died.  We were living in Atlanta, Georgia at the time and I felt the need for a small, protective living environment for myself and my total of 4 children.  I had heard of Celo, a small planned Quaker community in the mountains of North Carolina,  and called ahead to check out the possible availability of a rental

skinny

086cabin there.  There was one cabin available, and  I was given the landlord’s phone number.  The year was 1976.

I called and described my situation and it turns out the landlord was a physician who inquired about the

nature of my daughter’s heart defect.  He told me that surgery was now available for the defect, and as it turned out she subsequently underwent  and survived reparative heart surgery at Eggleston Children’s Hospital at Emory University, about three blocks from our home in Atlanta.

Our Shadow Selves Revisited

Published July 9, 2016 by Nan Mykel

john bearhs bookI inserted most of the material about Jung’s “Shadow” part of our personality on my “Our Shadow Selves” page.  I’ve just come across something that is too pertinent to bury at the bottom of a page as opposed to this “Post.”

In his 1982 book Unity and Multiplicity: Multilevel Consciousness of Self in Hypnosis, Psychiatric Disorder and Mental Health,” (Bruner-Mazel),  John O. Beahrs  appears to refer to “The Shadow” as “the Demon,” yet his observations are right on about dealing with the Shadow, and better put than anything on my page.  (I substitute “the Shadow” here for “demon.”)

I suggest a fourfold maxim to summarize treatment of problems of  the Shadow:

  1. Contact the Shadow (as object), validate its own needs and make an ally or friend of it.
  2. Re-own that which had been dissociated away, and experience it as subject (me).
  3. Accept, use and direct that energy of Self which had formerly been defined as evil.
  4. Be in full control of this.

A powerful statement by Edward Whitmont observes that when the ego catches sight of the shadow the ego most often reacts with an attempt to  eliminate it.  “Somehow, almost everyone has the feeling that a quality once acknowledged will of necessity have to be acted out, for the one state which we find more painful than facing the shadow is that of resisting our own feeling urge, of bearing the pressure of a drive,  suffering the frustration or pain of  not satisfying an urge. Hence in order to avoid  having to resist our own feeling urges when we recognize them, we prefer not to see them at all, to convince ourselves that they are not there.  Repression appears less painful than discipline….discipline rests on the ability to act in a manner that is contrary to our feelings when necessary” (Zweig and Abrams, 1991, 17. 18, Meeting the Shadow: The hidden Power of the Dark Side of Human Nature.)

 

 

 

Irreparably Harmed

Published July 9, 2016 by Nan Mykel

atco image

Source: https://www.change.org/…/ohio-state-house-protect-our-sheltered-worksh…

Petition to Ohio Governor John Kasich,

Ohio House and Senate Members.
Ohioans Demand Protection for Sheltered Workshops, Developmental Centers.  Ohio Adults with debilitating intellectual or developmental disabilities (I/DD) will be irreparably harmed if some of the Kasich Administration’s Employment First sheltered workshop budget and
policy proposals are enacted.

We applaud the Administration’s Employment First’s goals to increase vocation training, funding, and community employment for Ohio’s Disabled Citizens.However, Employment First has four critical failures: 1) misapplication of the Olmstead Decision and Americans with Disabilities Act (ADA); 2) mistaken justification of replacement of sheltered
workshop proposals by citing recent Federal CMS Regulations; 3) not recognizing that a significant proportion of the disabled cannot work in the community; and 4) decreasing the choices and
increasing the isolation of Ohio’s most disabled citizens. We believe that Ohio should continue to promote the existing sheltered workshop model through policies, direct State funding, and through Ohio CMS Medicaid Waivers.
Employment First is enabling the Justice Department’s misapplication of the Olmstead Court’s
interpretation of the ADA. The Kasich Admiration’s proposed Ohio Medicaid Budget contains many
Employment First proposals. One stated budget goal is to “replace workshops and facility-based day
services with new service models that promote community employment and integrated day
services.” The Administration cites recent increased federal scrutiny for their goal. Specifically they
cite one interim settlement agreement and two “DOJ” lawsuits as support for their workshop
elimination proposals. These DOJ efforts are actually the working of Disability Rights, a “private”
organization funded in part with DOJ funding. This group’s Ohio Chapter, Disability Rights Ohio
(DRO), has threatened to sue Ohio if it does not close the sheltered workshops (among other
issues). Rather than ignore or resist the DRO, the Administration appears to be assisting the DRO’s
misguided goals. As the recent Ohio Transition Plan’s public comment period uncovered, the DRO
does not speak for all of Ohio’s disabled. DRO is misapplying Olmstead’s limited ruling that
individuals with mental disabilities have the right to live in the community rather than in
institutions if “the State’s treatment professionals have determined that community placement is
appropriate, the transfer from institutional care to a less restrictive setting is not opposed by the
affected individual, and the placement can be reasonably accommodated, taking into account the
resources available to the State and the needs of others with mental disabilities.” Olmstead v. L.C. ,
527 U.S. 581 (1999) DRO is attempting to use this narrow residential decision to force Ohio to shut  down its non-residential sheltered workshops. This is the exact misapplication that the majority of
the Olmstead Court sought to prevent: “We emphasize that nothing in the ADA or its implementing  regulations condones termination of institutional settings for persons unable to handle or benefit  from community settings…Nor is there any federal requirement that community-based treatment be imposed on patients who do not desire it.” Id. at 601-602.
Second, the Administration is also mistaken in justifying its replacement of sheltered workshop,developmental centers proposals by citing recent Federal CMS Regulations that convey expectations regarding person-centered plans of care and to provide characteristics of settings that
are home and community-based. The Administration implies without support that sheltered  workshops are not integrated in nor support full access of individuals receiving Medicaid HCBS to
the greater community, do not include opportunities to seek employment and work in competitive  integrated settings, do not engage in community life, control personal resources, nor receive
services in the community, to the same degree of access as individuals not receiving Medicaid HCBS.
Absent in the Federal Regulations cited is a definite statement that sheltered workshops do not comply with these regulations. In fact, in its last “Exploratory Questions to Assist States in
Assessment of Non-Residential Home and Community-Based Service (HCBS) Settings,” the Federal CMS admits that; “(t)he manner in which each of these services meets the HCB settings requirements may vary.” The Administration seems to fudge this ambiguity by noting that “the CMS
is currently working with stakeholders to clarify expectations of this new rule for day activity  services, and additional guidance will be forthcoming.” It also ignores that many Ohio Disabled
citizens choose to remain in sheltered works because it meets their unique needs as outlined in their person-centered plans. Statistics show many individuals with I/DD have not shown an interest
in supported/competitive employment, and the majority who have tried it, ultimately return to sheltered employment.
Third, the Kasich Administration’s Employment First policies and budget fail to recognize that a significant proportion of disabled Ohioans simply cannot work in the community.  These Ohio citizens suffer from various debilitating intellectual or developmental disabilities including autism, moderate to severe mental retardation, and cerebral palsy. As a result, the Administration’s  contention that mainstream employment opportunities exist for all or even a significant number of
developmentally disabled persons is largely wishful thinking. It’s hard for anyone to get a job these  days. In many cases, the newly “employed” individual ends up leaving a 29-hour a week job in a  sheltered workshop for one where the individual only works one or two days a week for four hours a day. Working eight hours a week washing dishes alone in a restaurant kitchen is hardly integration into the community. Many families of the participants maintain that the sheltered work
shop programs provide them with useful skills and meaningful activities, and that there is nothing about them that segregates or isolates people.
Fourth, the Administration’s Employment First policies and budget will actually decrease choice and  increase the isolation of Ohio’s most disabled citizens. Sheltered workshops throughout the U. S. provide a safe environment for adults with I/DD to work, interact with their peers, and gain a sense of accomplishment. These facilities also provide transportation, off-site day habitation programs, and opportunities to for new experiences including taking a vacation or going on a camping trip. Individuals who choose to work in sheltered workshops are happy, safe, fulfilled, and are among their friends and peers. As the other disabled co-workers obtain or are forced to obtain “employment” in the community, the lower functioning disabled citizens that remain will become
more isolated. If sheltered workshops employing hundreds of developmentally disabled persons throughout the state are closed, most of those participants will end up in day-care nursing homes,
many of which offer few skill-based activities, much less any sort of wages for performing them. It is also about forcing people into a theoretical model of care, which, as usual, denies them and their families/legal guardians any say in that model. Community employment is not the answer for everyone. We need sheltered workshops! We should be creating more employment opportunities for people with disabilities – not eliminating options.
Olmstead and the ADA were not meant to take choice or any other kind of employment option away from persons with I/DD. Let your voice be heard and speak up for those who cannot speak for themselves. It is our responsibility to provide opportunities and support for individuals with
developmental disabilities. Do not deprive them of their choices and force them into settings which will diminish their quality of life. Help us protect sheltered workshops across Ohio and the nation!

Respectfully Submitted,

This petition was delivered to:

  • Ohio State House
  • Ohio State Senate
  • by

1 year ago


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